The Health and Disability Commissioner

www.hdc.org.nz

Information on the rights and responsibilities of consumers and providers and to resolve complaints by fair processes and credible decisions to achieve just outcomes. You will be able to find the Code of Health and Disability Services Consumers' Rights and information about the advocacy service available.

The Pituitary Foundation

www.pituitary.org.uk

Resources for people with pituitary disorders.

Flying with Children

www.flyingwithkids.com

NZ based website with great tips for long haul travel with children.

Height Matters

www.heightmatters.com

Website sponsored by Novo Nordisk with information on Growth Hormone and its use with GHD and Turner Syndrome patients.

Growth

Height Predictor for Children

www.keepkidshealthy.com/welcome/htcalculator.html

Provides a tool for calculating a child's future height, by entering the child's gender and height of both parents.

Body Mass Index

www.cdc.gov/nccdphp/dnpa/bmi/bmi-for-age.htm

Gives the Body Mass Index (BMI) for children up to age 20. Note: A healthy BMI for children varies significantly from a healthy BMI for adults.

Patterns of normal growth and development

www.kidshealth.org/parent/growth/growing/childs_growth.html

This website provides information on promoting overall health and wellness in a growing child, and n when to seek professional advice about your child's development. Makes recommendations about keeping an accurate growth chart.

Short Stature

www.keepkidshealthy.com/welcome/conditions/short_stature.html

An overview of short stature as a normal variation of a child's growth. Discussion covers ranges of normal growth at all stages of a child's development, and the impact on a child's overall growth potential of genetic, familial and environmental influences.

Turner Syndrome

Endocrinology and Turner Syndrome

www.endo-society.org/pubrelations/patientinfo/turner.htm

Jointly sponsored by the Hormone Foundation and the Endocrine Society, this website provides a general description and answers to FAQs about Turner Syndrome. It also provides information on tratment of this condition.

Common Concerns and Questions Answered

www.turner-syndrome-us.org/resource/faq.html

Causes, diagnosis, symptoms and characteristics are among the topics discussed on this site. Answers to common concerns and questions are also addressed.

Research

http://turners.nichd.nih.gov/

Overviews and abstracts of ongoing research projects related to Turner Syndrome. There is also a description of clinical and genetic features.

Online New Zealand support for the parents of children with Turner Syndrome

http://groups.msn.com/TurnersParentsNZ

Precocious Puberty

TooSoon

www.TooSoon.com

A useful website, with information on Central Precocious Puberty. This site was created by TAP Pharmaceuticals, the makers of Lupron (leuprolide acetate - in NZ = Lucrin), which is the treatment most often used for treating CPP.

General Information on Precocious Puberty

www.kidshealth.org/parent/medical/sexual/precocious.html

A description of the causes, signs and symptoms, diagnosis, and treatment options for precocious puberty. Includes information on caring for your child with precocious puberty and recommendations about when to contact the doctor if you are concerned your child may have this condition.

Online support for the parents of children with Precocious Puberty

groups.yahoo.com/group/precociouspubertysupport

McCune Albright Syndrome

Personal and clinical information

www.peppermintmoon.com/mccune-albright/

A parent's personal perspective linked with clinical information.

National Institute of Health

www.nichd.nih.gov/publications/pubs/Mccune.htm

Clear information on symptoms and endocrine abnormalities.

Online Support Groups

New Zealand Support for growth or feeding issues

health.groups.yahoo.com/group/GFNZ

New Zealand support for parents of children with Turner Syndrome

http://groups.msn.com/TurnersParentsNZ

Russell Silver Syndrome or Small for Gestational Age

health.groups.yahoo.com/group/RSS-Support

IUGR Support

health.groups.yahoo.com/group/IUGR

Precocious Puberty Support

groups.yahoo.com/group/precociouspubertysupport

Feeding Information

NEOCATE website

www.shsweb.co.uk/neocate/pat/index.html

Information and recipes relating to cows milk allergies.

Kids With Tubes

www.kidswithtubes.org

Website supporting parents of children with feeding tubes - NG tubes, G tubes and J tubes.

Pediasure website

www.pediasure.com/

Information on pediasure and recipe ideas

New Visions Feeding

www.new-vis.com/fym/p-feed.htm

Addresses oral-feeding development, issues surrounding tube feedings, diet and nutrition. Also discusses oral-motor development for feeding and speech.

Ways to boost calories and protein

www.med.utah.edu/healthinfo/pediatric/oncology/hchpd.htm

Contains calorific values of many foods that can be used to boost calorific intake.

Daily calorie Requirement Calculator

www.medindia.net/patients/calculators/dly_calorie_req.asp

Calculates the amount of calories needed based on several factors. Includes infants.